Hi, I would like to first introduce myself but also I choose to remain anonymous as I do and will get very personal with you guys, I am a 31 year old mom of 5 who currently lives in Florida, I am married and have been married since 2022, My son who is 2 and half was diagnosed with Cloves syndrome in 2023 when he was born and my 4 year old daughter was recently diagnosed with CLN6 BATTENS DISEASE on Jan 13th, I decided to create this blog so i can express myself and express the struggles and challenges I face on a daily due to these circumstances and real life issues,