Your journey starts here: You're not alone.
Welcome to Life Of A Medical Mom x2. This is our unfiltered story, a testament to resilience, love, and the unyielding spirit of family. We share our journey so you know that if we can make it through, you can too. You are not alone.
The unexpected path: Our diagnosis journey
Our world changed irrevocably with the diagnoses that shaped our family. First, our two-year-old son's CLOVES diagnosis brought profound challenges, testing our understanding and our relationship. Then, the heartbreaking diagnosis of CLN6 Batten Disease for our four-year-old fractured everything, making each day a testament to perseverance. These moments, though devastating, became defining chapters in our story, reminding us that we are all human, and you are never alone.
The balancing act: Marriage, work, and three other lives
Beyond the medical challenges, the sheer act of navigating life with three other beautiful children, nurturing our marriage, and managing work became a profound struggle. It’s a constant juggle, often feeling overwhelming, yet filled with moments of deep love and connection. We share these honest struggles so you can see the raw reality of it all, and understand that many families face similar impacts on their relationships.
Finding light: Joy, hope, and humor
Even in the darkest hours, our children’s joy shines through. The simple smiles, the innocent laughter, and the pure happiness in their eyes remind us why we fight so hard. These moments of hope, love, and sometimes unexpected humor, are the fuel that keeps our family moving forward, proving that light can always be found, even when navigating the toughest challenges.
"I hope mothers and wives like me will feel less hopeless and less misunderstood, and even fathers who go through the same thing."
You are not alone. Join our community, share your experiences, and find strength in shared journeys.